I swear I'm not going to get political on this one. Upfront I'll say that having been employed in the health care field, I am adamantly opposed to socialized medicine. I do NOT want the government making my health care decisions. I will say that I believe that is where we are rapidly heading, because people are so desperate and frustrated with the current system.
Okay, stepping off my soapbox now...
As I've mentioned before, we've spent our summer learning new and exciting medical terminology. Terms that even as a medical professional, I was not familiar with. We went in for a follow up with the neurologist today. More obscure terms and the realization that genetics are very complicated! Bottom line is that we need to see a hematologist and a geneticist. The specialists that we were referred to specifically, are so specialized that they really don't want to see your average Joe. In fact upon hearing Katelyn's initial diagnosis, their reaction was that 10 percent of the population has that and without clinical findings, it's really not that interesting. Fortunately, I understood enough to say, "ooh but we have clinical findings!" After hearing more, and with the promise of the faxed records to back my story up, they will consider hearing our case and offer an opinion.
Then it was the phone call to our pediatrician to deal with all the insurance paperwork that it's going to take to be allowed to see these specialists- assuming they grant us an appointment. So even though the neurologist feels the other doctors are important, everything must be cleared by the pediatrician.
How many phone calls does it take to get an appointment? The world (mostly me) may never know... I spent 2 hours on the phone this afternoon and still don't have a single appointment. I did get a really great genetics lesson from a sweet and wonderful soul (a genetics counselor) at Dr. Wheeler's office. She said that most likely this is all much ado about nothing. Really that's what I needed to hear. It will make the waiting much more tolerable. Because waiting is as far as I can get right now.
Remember that nice bullet pointed list yesterday? Yea, the stuff I was hoping to get done... Not even close. Took care of the 2 medical appointments. That's it. Two productive days in a row? Nope, not here, not now.